A Multimodal Analysis of Whānau Stories of Chronic Pain and Opioid Tapering
Authors List
Monro, H., Fernandes, L.G., Rehabilitation Teaching and Research Unit (RTRU), Department of Medicine, University of Otago, Wellington, New Zealand
Bean, D.J., Centre for Person Centred Research, Auckland University of Technology, Auckland, New Zealand
Upsdell, A., Chronic Pain Service, Te Whatu Ora Counties Manukau, Auckland, New Zealand
Davies, C., Tū Kotahi Māori Asthma and Research Trust, Wellington, New Zealand
Morunga, E., Te Toka Tumai, Te Whatu Ora, and Department of Psychological Medicine, University of Auckland , New Zealand
Moeke-Maxwell, T., School of Nursing, University of Auckland, Auckland, New Zealand
Te Morenga, L., Centre for Public Health Research, Massey University, Wellington, New Zealand
Liguori, A., School of Social Sciences, Humanities & Law, Teesside University, Teesside, United Kingdom
Thomas, J., Te Toka Tumai, Te Whatu Ora, Auckland, New Zealand
Aiono Le Tagaloa, L., Te Toka Tumai, Te Whatu Ora, Auckland, New Zealand
Pilkington-Ching, L., Rehabilitation Teaching and Research Unit (RTRU), Department of Medicine, University of Otago, Wellington, New Zealand
Devan, H., Rehabilitation Teaching and Research Unit (RTRU), Department of Medicine, and Wellington Pain Management Service, Te Whatu Ora Capital, & Coast & Hutt Valley, Wellington, New Zealand
Introduction
Although helpful in the short-term, long-term use of opioid medication for chronic pain can pose severe health risks. Opioid tapering can be challenging for patients and clinicians and resources communicating personalised experiences can be valuable for both parties. Digital storytelling (DS) allows research participants to tell their stories using multimodal elements (e.g. visual, voice, sound). DS has been used to communicate experiences of opiod tapering for whānau with chronic pain.
Aims
To explore how lived experiences of opioid tapering for chronic pain were represented through DS.
Methods
Four Kaupapa Māori principles guided the multimodal analysis of 10 digital stories; wairuatanga (spiritual care and connection), whanaungatanga (relationships), tātou tātou (reciprocity), and kotahitanga (unity). We applied Braun and Clarke’s six-stage reflexive thematic analysis to stories created by Māori whānau (as part of a wider project) who had tapered or were tapering opioids for chronic pain. We adopted a comprehensive approach to look at each of the multimodal elements present in the digital stories. We used NVivo and Miro software to map salient themes.
Results
We collated three main themes 1) Te taiao: Nature as refuge and storyteller, 2) Wairua: Repairing spiritual and relational ties, 3) Tino rangatiratanga: Voice, validation, and choice. Emerging themes highlight that connection, autonomy, and cultural framing are valued during opioid tapering journeys for chronic pain.
Conclusions
Our findings indicate enabling themes for meaningful experiences of opioid tapering. These themes highlight the need for tapering approaches that support self-determination, spiritual wellbeing, and relational care.
Monro, H., Fernandes, L.G., Rehabilitation Teaching and Research Unit (RTRU), Department of Medicine, University of Otago, Wellington, New Zealand
Bean, D.J., Centre for Person Centred Research, Auckland University of Technology, Auckland, New Zealand
Upsdell, A., Chronic Pain Service, Te Whatu Ora Counties Manukau, Auckland, New Zealand
Davies, C., Tū Kotahi Māori Asthma and Research Trust, Wellington, New Zealand
Morunga, E., Te Toka Tumai, Te Whatu Ora, and Department of Psychological Medicine, University of Auckland , New Zealand
Moeke-Maxwell, T., School of Nursing, University of Auckland, Auckland, New Zealand
Te Morenga, L., Centre for Public Health Research, Massey University, Wellington, New Zealand
Liguori, A., School of Social Sciences, Humanities & Law, Teesside University, Teesside, United Kingdom
Thomas, J., Te Toka Tumai, Te Whatu Ora, Auckland, New Zealand
Aiono Le Tagaloa, L., Te Toka Tumai, Te Whatu Ora, Auckland, New Zealand
Pilkington-Ching, L., Rehabilitation Teaching and Research Unit (RTRU), Department of Medicine, University of Otago, Wellington, New Zealand
Devan, H., Rehabilitation Teaching and Research Unit (RTRU), Department of Medicine, and Wellington Pain Management Service, Te Whatu Ora Capital, & Coast & Hutt Valley, Wellington, New Zealand
Introduction
Although helpful in the short-term, long-term use of opioid medication for chronic pain can pose severe health risks. Opioid tapering can be challenging for patients and clinicians and resources communicating personalised experiences can be valuable for both parties. Digital storytelling (DS) allows research participants to tell their stories using multimodal elements (e.g. visual, voice, sound). DS has been used to communicate experiences of opiod tapering for whānau with chronic pain.
Aims
To explore how lived experiences of opioid tapering for chronic pain were represented through DS.
Methods
Four Kaupapa Māori principles guided the multimodal analysis of 10 digital stories; wairuatanga (spiritual care and connection), whanaungatanga (relationships), tātou tātou (reciprocity), and kotahitanga (unity). We applied Braun and Clarke’s six-stage reflexive thematic analysis to stories created by Māori whānau (as part of a wider project) who had tapered or were tapering opioids for chronic pain. We adopted a comprehensive approach to look at each of the multimodal elements present in the digital stories. We used NVivo and Miro software to map salient themes.
Results
We collated three main themes 1) Te taiao: Nature as refuge and storyteller, 2) Wairua: Repairing spiritual and relational ties, 3) Tino rangatiratanga: Voice, validation, and choice. Emerging themes highlight that connection, autonomy, and cultural framing are valued during opioid tapering journeys for chronic pain.
Conclusions
Our findings indicate enabling themes for meaningful experiences of opioid tapering. These themes highlight the need for tapering approaches that support self-determination, spiritual wellbeing, and relational care.
